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Message:   Fisting after hysterectomy

From: porcupine     Sent: 12 Jan. 2003     Message 1 of 11

My sweetheart (48) has had low back pain for some time. MRI showed disc rupture (L5,S1) which was removed 3 yrs. ago. Pain returned 3 months later. Latest assumption by neurologist is that she might benefit from a hysterectomy if the pain is caused by endometriosis (undiagnosed by her OB) and would in any case eliminate the possibility of ovarian and uterine cancer. There is more relating to new technology and tissue implants in the affected disc space, as well as injections at that site in the meantime to alleviate her pain in the meantime. However, my questions to the group are specifically these:

1. More than any other question, does a hysterectomy sound reasonable under the circumstances?

2. Does anyone have medical or practical experience, advice, or recommendations concerning fisting after hysterectomy?

3. Would very shallow fisting be safe?

4. What methods could be used to retain the hard won (no pun intended) and joyfully luxurious huge pussy that we have to play with?

We have read the treatise offered by Zappaz. My sweethearts' health is the main concern, but giving up fisting her incredible pussy would be a traumatic blow. We hope that there are members with helpful information.

Thanks friends.

Porcupine



From: porcupine     Sent: 12 Jan. 2003     Message 2 of 11

Follow-up to my previous message: We have read the discussion in the archives between Zappaz and Gina which occurred in late 1999 regarding this subject. Is there anything new?

Thanks,

Porcupine



From: Jimm     Sent: 12 Jan. 2003     Message 3 of 11

porcupine,

Your post said "Latest assumption by neurologist is that she might benefit from a hysterectomy if the pain is caused by endometriosis (undiagnosed by her OB) and would in any case eliminate the possibility of ovarian and uterine cancer. "

Wow, that sounds to me like reaching for straws!

Let's remove your appendix because someday you may get shipwrecked and be the only survivor on an uninhabited island that has no doctors, and you could then get appendicitis... so the surgery will save you the possible danger of dying from unattended appendicitis.

Ask another neurologist as this one seems to have 'run out of ideas'.



From: Tyjardia     Sent: 12 Jan. 2003     Message 4 of 11

I did not see all of this discussion, but I am write in thinking your wife is having some sort of chronic pain that may or may not be due to endometriosis ?

If you/she needs some advice on this then please mail me at tyjardia@hotmail.com. I am a doctor, though I no longer practice, and have considerable experience with conditions that involve chronic pain, please feel free to write.
Strictest of confidence naturally.
Regards
Tyjardia



From: Joe     Sent: 13 Jan. 2003     Message 5 of 11

Porcupine,

I'm very sorry to hear about your partner's problems. I wish I had some words of wisdom.

Having a hysterectomy to treat an unconfirmed possibility of endometriosis sounds pretty overboard to me, although I know nothing about this stuff except for what I've found on the Web:
http://www.endometriosisassn.org/endo.html
http://www.endometriosisassn.org/treatment.html

I would think that one would at least want to confirm the endometriosis before doing anything that major.

> We have read the discussion in the archives between Zappaz and Gina which occurred in late 1999 regarding this subject.

I just thought it might be an idea to post a link to the discussion that you are referring to, in case others are interested:
http://cindyandjoearchive.com/Messages/Cat10/msg00119.htm

Good luck.

Joe



From: porcupine     Sent: 13 Jan. 2003     Message 6 of 11

Friends

Have spent some time reading the pros and cons of cervical removal, and post surgical experience after cervical removal on hystersisters.com. Some of the points made were:
1 Keep the cervix if you can for all the reasons Zappaz states.
2 Modern techniques for cervical removal do not shorten the vagina.
3 Sex is still good after, even if the cervix is removed, although there were some negative reports.

We still are keenly interested to hear from other club members and their experience after hysterectomy.

Thank you all for your help,

Porcupine



From: Cindy     Sent: 13 Jan. 2003     Message 7 of 11

Dear Porcupine and Partner,

To me having a hysterectomy comes into the category of major surgery, and thus is something to be avoided unless it's really necessary. Major surgery involves various risks. You also mention "eliminate the risk of ovarian cancer", i.e., implying that the doctor in question intends to remove the ovaries as well as the uterus, resulting in instant menopause, with all the problems that brings.

Doing all that based on flimsy indications and without any sure expectation that it will resolve the problem of chronic pain sounds crazy to me. I would suggest that you get a second (or third, or fourth) opinion.

Is there a chronic pain clinic in your area? Some kinds of chronic pain are not yet "curable" by modern medicine, although there are treatments and medication that make it possible to live an OK life with the pain.

I can sympathize with your desire to be free of pain, because it's very difficult to live with. I've had chronic low back pain for the last 15 years, and I've chosen to have it treated with arthritis medication, even though in principle I'm opposed to long-term medication. The pain as such was not intolerable, but it made me so depressed that I could not enjoy life.

Regards, and best of luck,
Cindy



From: porcupine     Sent: 14 Jan. 2003     Message 8 of 11

Dear Cindy,

Thanks for your concern. This is a big deal to us, as it would be for anyone. My sweetheart has really undergone a radical change in lifestyle the last few years that has prevented her from doing many of the things she truly enjoyed, as well as many of the things we enjoyed together. We are lucky to still have many positives, and among those is an exhilarating sex life mostly unaffected by this damned back pain.

We have unfortunately, investigated most known treatments and medications for back pain. Having done that, we are now grasping at straws for relief. She is almost to the point of giving herself a hysterectomy if the odds were 1 in 10 that it would help. The thing that scares hell out of us is the possibility, despite what what we have read lately to the contrary, that taking the cervix could cause a significant loss of sensation in the vagina. We have discussed it and would gladly accept the remaining cancer risk associated with leaving the cervix alone, but GYN's like to take it out as well.

Since she is now 48 and has been perimenopausal for 3-4 years, it is tempting to leave well enough alone and let nature take it's course. I just don't think she can bear the pain if that process takes another 2 or three years.

After following the links Joe sent on endometriosis, we were both impressed by the fact that she fits the profile of a woman with severe endometriosis. There is no test that we know of other than exploratory surgery to confirm or deny it's presence. If they find it, our understanding is that removal of the ovaries is necessary to prevent the return of the tissue.

We have investigated two pain clinics, and alternative therapy clinics. We are trying to exhaust conventional medical remedies before we take that step.

We still have much to learn in a hurry, since surgery is scheduled within 45 days. We have follow-up appointments and other resources to explore before we make a final decision. But as so many have said before us, it is wonderful to have this group to turn to for pleasure, knowledge, and a unique perspective on everyday problems.

Porcupine



From: Cindy     Sent: 14 Jan. 2003     Message 9 of 11

Dear Porcupine and Partner,

It sounds like you have explored all of the viable alternatives. All I can do is to wish you good luck.

Best regards,
Cindy



From: Jimm     Sent: 15 Jan. 2003     Message 10 of 11

Yes, you best follow the Doctor's advice, and if he insists on the Hysterectomy you might see one more doctor.

I have a friend who has never done fisting. She was advised to have a hysterectomy done for possible endometriosis, but she went to another doctor and she did a scan that was negative for endometriosis. She then gave my friend some pills that she said 'always stops all the pain' from endometriosis as a test (but the pills could not be taken long term). This proved the pain was not endometriosis, as the pain was just the same while taking the pills. Now about two years later, the back pain is gone without surgery after she took some acupuncture.

I have done fisting for several ladies, and those with hysterectomies all were rather shallow in their vaginal depth, except one who only had the top part of her uterus removed.

Nobody can advise you but medical people, so best luck finding 'good' medical people.

Just to be sure, if your neurologist wants you to see a member of his group, try a doctor not in his group, as most 'group doctors' share the money with each other that they collect.

Sorry you are in such a vice...



From: Tyjardia     Sent: 25 Jan. 2003     Message 11 of 11

Hi,

I replied to your mail, but now I have seen the original discussion I am rather concerned. You certainly can get back pain from endo, as you can from a retroverted uterus, but I certainly think the nurologist is trying to dodge his responsibilities here. He should be looking into a nurological cause for the back pain, but I personally suspect that he thinks this will be one of those intracable cases that he can do little for, and he is rather reluctant to tell you so he send you onto some one else.

Given her history I wonder if your wife is now having pain from the Facetal joints. These joints, 4 to each vertebral body (two above, two below) provide the lateral stability for the spine. They are small and when additional strain is placed upon them by spinal injury, then they wear faster and an inflammatory response can kick in in them, artheritis. Is you wife getting constant pain (I mean constant, even aware of it during sleeping), does she complain of things in her back feeling ' hot ' ? I would also bet that her nuro examination is actually normal (taking into account her surgery of course) ?

Mail me at tyjardia@lycos.nl with your answer

Beste
Tyjardia

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